Sunday, December 2, 2012

HCM Kills Again; 27yr old Michell Cole


Today in the news headlines read:
The Second Player to score a competitive goal at the new Wembley Stadium, Mitchell Cole, has died at the age of 27. Writes ESPNFC England
Michell Cole makes UK headlines today: “Killed by heart attack” writes Steve Myall
On Friday night Mitchell Cole Tweeted: “London tonight for the usual kickabout with the lads”
Last year Cole was quoted in interviews after his early retirement announcement: “Specialist gave me a 1% change of dropping dead and sport quadruples that risk.”
The specialist diagnosed Mitchell Cole with Hypertrophic Cardiomyopathy (HCM), but he didn’t have an ICD (Implantable Cardiacoverter Defibrillator) that could have, possibly, saved his life.  
In 2011 Mitchell Cole spoke at the HCMA (Hypertrophic Cardiomyopathy Association) to explain how he stopped playing professional sports due to his HCM diagnosis. Causing me to believe he was well informed of HCM and its risks. Maybe he didn't think a usual "kickabout with the lads" would hurt anything.
I was approached last Friday the very day Michell Cole died, by a man and father of young athletes. He said to me, “We hear you talk about “it” but it just doesn’t matter it doesn’t concern us.” How does he know “it” doesn’t concern him or anyone in his family? 1- 500 people have HCM! Is his family so special they are excluded?
As painful as that was to hear, it pains me to read headlines like Mitchell Cole dying of the same disease. It’s also agonizing to read “heart attack” when it was the perfect opportunity to inform the public about this silent killer; Hypertrophic Cardiomyopathy (HCM).
So I will continue to “talk” about “it” (HCM) because maybe, just maybe, it will save soneone's life.

Wednesday, November 28, 2012

What is Hypertrophic Cardiomyopathy (HCM)?

       What is Hypertrophic Cardiomyopathy (HCM)?




Cardiomyopathy is a condition in which the muscle of the heart is abnormal in the absence of an apparent cause.

 While HCM has typically been recognized by its structure ie., hypertrophy, the electrical function of the heart are also adversely affected.

There are three types of Cardiomyopathy: "hypertrophic", "dilated" and "restrictive".

The main feature of hypertrophic Cardiomyopathy is an excessive thickening of the heart muscle (hypertrophy literally means to thicken). Thickening is seen in the ventricular septal measurement (normal range .08-1.2cm), and in weight. In HCM, septal measurements may be in the range of 1.3cm to 6.0+cm. Heart muscle may also thicken in normal individuals as a result of high blood pressure or prolonged athletic training.

Furthermore, there is a fine line between and athletic heart and a heart with HCM.


Easy for them to say.

But really ... 1 of 500 in the USA has HCM! For the most part, it's the kids or adults that don't know they have it, then suddenly die of a "heart defect" as most news reporters put it.
My boys passed physical examinations by physicians and even cardiologists; they had a hard time figuring out why Brody was weak and tired all of the time. In my opinion, at age 13 or even younger, once a year ask the doctor give your child an EKG. They cost approximately $30 ... and make sure a cardiologist reads it! It was the test that ultimately saved Brody's life.

If I didn't visit www.4hcm.org my life would probably be without Brody and even, Zane. I owe them, and I owe it to you to let you know a silent killer could live within anyone of us.

Support Heart Disease Awareness

Tuesday, November 27, 2012

The Ball


The soccer fields, the players, the coach, the team and the fans are missing something.
Out in the back yard sits a familiar round shape, a well-known ball. It now sits alone about forty feet from where my brothers and I kicked that ball to score thousands of goals, in thousands of games and played thousands of games. We taught one another how to be better soccer players, better sportsmen and developed our passion for the game. But today the ball just sits lonely, waiting for the three of us to give it another swift kick.
Bright Red, white and black bright colors shinning in the sun. As the day passes each color seems to shine brighter as the balls shadow slowly moves around from right to left until fading, once more into the darkness of night.
I haven’t dared go out and kick that ball. We don’t talk about that ball. As we see that ball somehow making its way, traveling away from our house, being pelted by the rain and pushed by the wind it moves further away.
It is cold outside. The leaves on the trees have turned colors. It looks as if the ball has moved towards the trees. I am still not brave enough to go kick that ball. As it sits today, closer to the bright red, green, gold and yellow covered trees, I can see the ball has changed. It is not the bright red it once was.
Snow has covered the once brilliant colored, lively, bouncy soccer ball. It lays at the edge of the trees, one hundred yards away. It had traveled the distance of a large soccer field it traveled, it rolled as if it was shrugging its shoulders, wondering why we left it. Hanging its head low, deflating its big round self into a smaller size as it made its lonely way, across the empty soccer field, rolling slowly away, slowly to hide.
My first steps were taken just to go kick a soccer ball. So it seemed natural for me to follow both my brother’s footsteps and play year-around soccer. Cody and Brody would pass a ball with me before I could even stand. Then as I learned to walk, and run they taught me everything they knew.
Shouting, cheering, we heard the loud roar from the crowd. Brody knocked the ball forward, dribbling up the side of the field, looking up for his next move. He sees Cody open and makes the pass. Cody is tall, fast and gifted with strength and power. Runs over anyone in his way keeping the ball at his feet, for no fouls are called. Cody sees me open, passes it right to my feet. I touch it at the perfect angle, tapping it past the goalkeeper, and scoring the winning goal! Brody and Cody race towards me with hands in the air cheering and yelling my name. Nothing could be sweeter that the three of us playing soccer in our back yard!
Cody and Brody are much older than me. They are on traveling soccer teams and on the high school varsity team. Cody, the oldest, is tall like the trees. I heard one of his teammates say that he never liked running into Cody because it was like hitting a brick wall. Brody is much shorter, but has skills that make everyone go ahhhh. Don’t tell him I told you this but I believed he had magic in his cleats. I still don’t understand how he moved the ball around so smoothly while bolting across the field.
It only took a moment for all things to change.
Lively, full of air the ball bounced with excitement as the three of us played soccer in our back yard. Bright with color, always joyful, taken outside to play and inside after games, drills, and practices. Even dried off after playing in the rain or wet from the dew of the night air, the ball was kept like a prized possession, and always shining like a dazzling trophy, that ball seemed to be alive.
No one wanted to talk about the Ball. No one admitted they looked at the ball. It was a glance, and then silence. The three of us felt as empty as that old discarded ball.
One day, like every other day, the ball came to its resting place. Our world stopped, we heard no cheers, no juggling, or balls hitting the back of the net. The Ball Dropped still, as my brother Brody was taken to the hospital.
Brody never laid eyes on his soccer ball again. He had hate, anger and fear inside of him. The ball would not understand that Brody could never play sports again because of his bad heart. I call it HCM. I learned to say it. It took some practice - Hypertrophic Cardiomyopathy. Some kids do die from it, we are so lucky Brody is fine. I might get it, but I know I’ll be alright. Brody has showed me how to be strong and brave.
We went down to the trees and found that old tattered ball one day. The happy memories we had, didn’t fade as much as the colors on our lost soccer ball. We picked it up together, cleaned it and now it sits … maybe watching or listening to the music we play together. Cody sings and plays keyboard, Brody rocks on piano and I have picked up both drums and guitar. Filling the house with laugher, joy and lots of music I know that raggedy old faded ball, sitting on the edge of the piano, is bouncing to the beat to the music.



 

"If everyone plays, everyone wins." ~ Coach Brody



Eagerly swinging legs, back and forth under the bleachers, eyes fixed, intensely watching the game. His round copper eyes lit-up when the coach approached him to ask if he wanted to join his big brother’s team. Skills learned and respect earned early in Brody’s life. Realizing this is one special place, where a young enthusiastic child can learn to play soccer, baseball and basketball. However growing older he recognized that it was more than sports he was learning at the YMCA. Family involvement and volunteering, Brody didn’t see it as “work” or “volunteering” he simply saw it as the “thing to do” and “the place to be.” His jobs were as simple as picking rocks up from the soccer field and trash after tournaments, simple but he knew these jobs would be appreciated.

Experience, talent and hard work earned Brody a starting position, his freshman year, on his high school varsity soccer team. A winning season, a letter earned and hopes for the next three years came crashing down when suddenly becoming ill, escaping sudden cardiac arrest. The diagnosis was Hypertrophic Cardiomyopathy, the leading cause of sudden cardiac death in young athletes. The painful news was delivered to Brody; “No more playing sports.”

The YMCA staff and crew called on Brody to put his experience to work. They asked if he would help coach a young soccer team. Worried about his health, but wanted to be back on the field, volunteering was the most he could do. As his mother, looking back on this opportunity, it was the boost he needed. Brody was stripped of his life, how he knew it, and the Y gave back his courage.

“If everyone plays, everyone wins” ~ Coach Brody.

He was a soft spoken coach, smiling back at every player, encouraging them to simply kick the ball, run around, make friends and have fun. Most of his teams were under six years old!

Brody volunteered an average of 50 hours a year, giving whatever his health, school work and his commitment to playing classical piano would allow. Brody is graduating top four in his class despite missing dozens of school days sick and undergoing heart surgery at age sixteen.
Imaging Brody without the positive support of our YMCA is dreadful. Brody is a product of the Y and what a YMCA can do. They trained, encouraged and supported him. The outcome: A motivated, caring, giving, respectful, and strong kid!

Brody is days away from graduating from high school and is already trying to establish a YMCA Endowment fund. This endowment would be a scholarship type award to be given to a local YMCA member and high school junior or senior. They must be nominated by a “in good standings” member of the Rome Floyd Co. YMCA. The purpose is to acknowledge local high school students, YMCA youth members and who exemplify the YMCA core values of caring, honesty, respect and responsibility. The nominator must submit a two to three page nomination letter showing specific examples of how the student exemplifies each Y core value. Winners will be awarded (a percentage of the Endowment fund) for the student to purchase books at college or a year membership at the YMCA. Other details are yet to be determined by Brody.

Remembering that little boy swinging his legs eagerly on the bench and now looking into those copper colored eyes and seeing his vision of giving back … A true testament of what the YMCA can do for you!

Thank God he Rocks



His heart might not tick-tock like a clock,
So thank God he Rocks!

His heart larger … thicker
This doesn’t cause him rage,
Nor keeps him caged.

A heart in a boy so unique,
He found talent and technique.

Is this some kind of redemption?
May make you question.

With every thump
Every pump,
A river of notes streaming 
Through every vein they float, gleaming.

That must be why,
We call this guy
Rocker Zane

Fluent to our ears,
No one has to fear.

From Jazz to Christian Pop

Thank God, Zane Rocks!



Zane was diagnosed at age 13 with HCM.
A Cardiac Ablation was performed months after
due to WPW syndrome.
Currently, he has an Implantable defibrillator.
Zane plays 13+ instruments
The youngest, at age 14, hired to play Drums and Bass
with a local Christian Band.

@RockerZane on Twitter & Instagram
YouTube: http://www.youtube.com/user/rockerzane

Because We Know, He Lives!



“Young victim was in top physical condition and best on the team” cried loved ones.
An unexpected killing beast lies within 1 of 500 young athletes. What is this silent killer? It’s the heart disease Hypertrophic Cardiomyopathy (HCM). The sleeping killer awakens strikes and destroys. The first diagnosis of HCM is often made too late by a medical examiner, if it’s made even then.
The soccer ball was crossed to Brody, #3. The lone freshman bolted past his defender winning the ball. Sprinting up the field, outrunning his opponents, he looked for an open man. His eyes spotted #12, his brother Cody, lead scorer in the state. Cody shook his defender running towards Brody’s perfect pass. Cody lept into the air heading the ball over the defender, past the keepers finger tips and in for the goal! Plays like, that made their team Regional champions and took them to state finals. After regionals, Brody wasn’t himself; no bursts of speed and he no longer out maneuvered opponents. Signs were screaming at us, and tugging at Brody but not being a complainer he pushed onward. Exhausted after final exams, he spent five days in bed. I finally forced him out then he collapsed in front of me. His skin grayed, sweat beaded and I touched his cold face. He experienced something that resembled a heart attack. I rushed him to the hospital before it was too late. Without a diagnosis, Brody would have been back on the soccer field and his heart would be a ticking time bomb. He no longer plays soccer nor can he be involved in active sports because of the risk of sudden death.

HCM is a relatively unknown disease but the leading cause of death of young athletes in the U.S. Some famous victims include: San Francisco 49ers offensive lineman Thomas Herrion only twenty three years old who collapsed in the locker room after a preseason game. Jason Collier, an Atlanta Hawks center, died in the middle of the night not knowing he had HCM. Ryan Shay, twenty eight, a runner and Notre Dame graduate from Michigan. However, most victims are teens, not famous and in the public eye.

My heart breaks every time I hear that a young life has been taken by sudden cardiac death. Increased awareness of HCM could possibly save hundreds and thousands of lives. Luckily, Brody is enjoying fulfilling life, and today he does not need a surgically implantable cardioverter-defibrillator (ICD). We will adjust to a new midfielder, Brody will learn to adjust to not playing, but we don’t have to adjust to life without Brody.

Pass the word and learn more by visiting www.4HCM.org